Lynette wants all of you to know how deeply she appreciates the many kindnesses and thoughts and prayers everyone has put forth.
This is an ongoing story of our family as we struggle day to day. Marky has a very rare disease called retro-peritoneal fibrosis which simply means there's a fibrous coating of crud all over his organs. His prognosis is unknown, since the disease is so rare. We appreciate all who visit Marky's blog and thank you for your love and support.
Saturday, December 19, 2009
Mark Jeanes having been originally scheduled for the bone marrow biopsy today, December 19, was thrilled to hear that he will instead have to wait until tomorrow: his parents however were not so thrilled. Seems that they are tired of the stay and the unknown, to wit; the original diagnosis that the oncology team was 90% certain of was Burkitt's Lymphoma. They now have redacted that "for sure diagnosis" in favor of the the, "who knows diagnosis." The Gold Standard of Leukemia and Lymphoma diagnostics is the Bone Marrow Biopsy and that (they say) will either definitively say there is or isn't a cancer. Can you imagine the emotion James and Lynette are experiencing. Normally a person needs to purchase a roller-coaster ticket for this kind of ride.
Ken, you have such a way with words! I'm glad we get to read your telling of events now too!
ReplyDeleteHang in there...this has to be the worst part, THE WAITING GAME! We all love you very much. Be strong!
ReplyDeleteYou all are truely very inspirational!! There is not a day or night that goes by that we are not thinking of you guys! We are here for you if you need anything, be strong and know that we love you! love, The Keslchs
ReplyDeleteWe are all praying that things go well this morning. We too are always thinking of you and your family. Thanks for the continued updates. Here's hoping for some better and more clear results and a more pleasant night. Hang in there. We love you guys!!
ReplyDeleteThe Church of Christ where Kelly's mother attends has put Marky on their prayer list and all prayed for him in Church today. We love you Marky!
ReplyDeleteDear Mark,I hope you get so so so so soooooo much better. I'm sorry your sick. love, Soleil Hammond
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