This is an ongoing story of our family as we struggle day to day. Marky has a very rare disease called retro-peritoneal fibrosis which simply means there's a fibrous coating of crud all over his organs. His prognosis is unknown, since the disease is so rare. We appreciate all who visit Marky's blog and thank you for your love and support.
Saturday, December 19, 2009
Today so far has been a pretty good day off for Mark with simply the usual pokes and prods but no torture sessions.
Mark maintains his sense of humor through it all but misses his friends and brothers.
Sam Jeanes is feeling the uncertainty of the crazy schedule and moving about from place to place but he too is a solid citizen.