This is an ongoing story of our family as we struggle day to day. Marky has a very rare disease called retro-peritoneal fibrosis which simply means there's a fibrous coating of crud all over his organs. His prognosis is unknown, since the disease is so rare. We appreciate all who visit Marky's blog and thank you for your love and support.
YAHOOOOOO!!!! I feel for you Marky- no 7 year old should have to share that space. You look great Marky!!! Congrats, we can't wait to hear what the doctors have to say. You are all so patient, even if it is forced!
So Mark, You can start planning the pranks we discussed this morning. Sure was fun to see you laugh and actually talk about eggs and bacon! Go for it buddy. Love, Ken Vickie and Nathan
A real life, awesome, humbling, testimony strengthening, faith building, unbelievable miracle. Marky, it is beyond fabulous to see you more or less tubeless. Big hugs from Steve and me.
So glad to see the N/G tube is out, happy day's are here again. I just got back from Church, and a bit tired. So many people have asked us about you Mark, and glad to here your are recovering from, this, thank God. Soon, you'll be able to go home, and live a pertty normal life. Take care, love you all. Grandma & Grandpa Simmons
Hallelujia!!!!! Isn't that face so cute with that big ol smile and no tubes!! YYYYYYAAAAAYYYYY!!!!!
ReplyDeleteWhat a handsom little boy, I couldn't be happier for you Lynette!
ReplyDeleteRusty and Tammi Simkins
Lookin' good kiddo! Weeeee Heeeeee!
ReplyDeleteYAHOOOOOO!!!! I feel for you Marky- no 7 year old should have to share that space. You look great Marky!!! Congrats, we can't wait to hear what the doctors have to say. You are all so patient, even if it is forced!
ReplyDeleteSo Mark,
ReplyDeleteYou can start planning the pranks we discussed this morning. Sure was fun to see you laugh and actually talk about eggs and bacon! Go for it buddy.
Love,
Ken Vickie and Nathan
YEAH! that is AWESOME news! Keep up that great smile!
ReplyDeleteThe Evans Family
A real life, awesome, humbling, testimony strengthening, faith building, unbelievable miracle. Marky, it is beyond fabulous to see you more or less tubeless. Big hugs from Steve and me.
ReplyDeleteYay! Marky has finally gone "wireless"!!!! Love you Marky!
ReplyDelete-Erinator
Wow! It's great to see your smile again. It must feel great to have that tube gone. Way to go, Mark!
ReplyDeleteSo glad to see the N/G tube is out, happy day's are here again. I just got back from Church, and a bit tired. So many people have asked us about you Mark, and glad to here your are recovering from, this, thank God. Soon, you'll be able to go home, and live a pertty normal life. Take care, love you all. Grandma & Grandpa Simmons
ReplyDeleteWoooo-hoooo! :) Congratulations, Marky! I bet your nose is so glad it got "picked"! Love & Prayers from The Wallaces
ReplyDelete