This is an ongoing story of our family as we struggle day to day. Marky has a very rare disease called retro-peritoneal fibrosis which simply means there's a fibrous coating of crud all over his organs. His prognosis is unknown, since the disease is so rare. We appreciate all who visit Marky's blog and thank you for your love and support.
Saturday, January 23, 2010
Flash: Mark is going to get his Tube pulled !!!!!!!!!!!!!!!!!!!! He is debating if he wants to do it himself? Anyway Mark is having a good day and we are going to try real food.
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