This is an ongoing story of our family as we struggle day to day. Marky has a very rare disease called retro-peritoneal fibrosis which simply means there's a fibrous coating of crud all over his organs. His prognosis is unknown, since the disease is so rare. We appreciate all who visit Marky's blog and thank you for your love and support.
Wednesday, March 21, 2012
Today is: WORLD DOWN'S SYNDROME DAY ! My good friend, Duke, just reminded me ! Sam and his band of Angels deserve their very own day. Nuff said!
EVERY DAY is World Sam's Day!!
ReplyDeleteWhat a wonderful mom you are! You're strength and resolve unparalleled! What a joy it is reading your blog and becoming acquainted with your family!
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