Thursday nite after Marks Doctor visits----

After 5 hours at Primary's seeing 3 different Docs and getting more

blood taken------ WE CAME HOME !

THAT'S THE IMPORTANT THING ! !

The rest of the story is... Mark can back off his TPN (IV feeding)

down to 14hrs. instead of 18 hrs. The GI docs are collaborating with the

Rheumatology Doc's about future drug therapies. ie, how much longer to

stay on the steroids, whether to start up the Methatrexate again (chemo)

and whether to throw some other meds in the cocktail.

All of these meds have their side-effects that need to be closely monitored.

Seems like these Docs are very concerned about a long term plan and liver

damage seems to be one of the biggest deals.

While the Rheumatology Doc examined him, she noticed some kind of

weird reaction when checking his reflexes. She termed it "Clonus".

She double checked him, and then went and got the Neurology Docs to come look at him!

Short version is: they want Marky to get an MRI of his spinal column.

The worry is that some of the Sclerosing, inflammatory, spindle cells

have creeped into his spinal canal ! ! ! !

I anticipate the usual verdict----"We're not sure" !

But this will give us all something new to worry about, since we've had

such a great week ! A WHOLE WEEK OF GOOD STUFF is way above

and beyond our usual routine around the Jeanes household.

This WAS an unbelievably fantastic week. All of us sleeping under the

same roof! And HAVING a roof to sleep under.... Who could dare ask

for more and receive it !

We face each day as if it were a gift, dont we?, I Know I do.

Thanks today to our dear friend Beth Dansie for staying w/ Marky

while Marksmom worked the morning and James went to school !

She didnt even feed him chicken stir-fry ! She is a gift, along with her

family !

Love to everyone......Lynette