Thursday, April 8, 2010
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This is an ongoing story of our family as we struggle day to day. Marky has a very rare disease called retro-peritoneal fibrosis which simply means there's a fibrous coating of crud all over his organs. His prognosis is unknown, since the disease is so rare. We appreciate all who visit Marky's blog and thank you for your love and support.
Our Valiant Little Warrior
Donations
Amazon Best Seller : "Master of Emotion" ---written by Marky's Aunt DeAnn O. Huff.
--All proceeds from this book go to help with Marky's --Medical expenses!
http://www.amazon.com/Master-of-Emotion-ebook/dp/B006JNAX2M/ref=sr_1_1?ie=UTF8&qid=1323787380&sr=8-1
**You can also go into any America First Credit Union branch in Utah, to make a Tax Free donation. The account is listed as, "Mark Jeanes Charitable Donations Account". ***
--All proceeds from this book go to help with Marky's --Medical expenses!
http://www.amazon.com/Master-of-Emotion-ebook/dp/B006JNAX2M/ref=sr_1_1?ie=UTF8&qid=1323787380&sr=8-1
**You can also go into any America First Credit Union branch in Utah, to make a Tax Free donation. The account is listed as, "Mark Jeanes Charitable Donations Account". ***
Favorite Thoughts on Hope
Fall seven times, stand up eight.
~Japanese Proverb
He conquers who endures.
~Persius
Nothing says I Love You like a clean toilet to throw up in!
~Author unknown
The race is not always to the swift, but to those who keep on running.
~Author unknown, in reference to Ecclesiastes 9:11
Don't be discouraged. It's often the last key in the bunch that opens the lock.
~Author Unknown
Big shots are only little shots who keep shooting.
~Christopher Morley
Look at a stone cutter hammering away at his rock, perhaps a hundred times without as much as a crack showing in it. Yet at the hundred-and-first blow it will split in two, and I know it was not the last blow that did it, but all that had gone before.
~Jacob A. Riis
~Japanese Proverb
He conquers who endures.
~Persius
Nothing says I Love You like a clean toilet to throw up in!
~Author unknown
The race is not always to the swift, but to those who keep on running.
~Author unknown, in reference to Ecclesiastes 9:11
Don't be discouraged. It's often the last key in the bunch that opens the lock.
~Author Unknown
Big shots are only little shots who keep shooting.
~Christopher Morley
Look at a stone cutter hammering away at his rock, perhaps a hundred times without as much as a crack showing in it. Yet at the hundred-and-first blow it will split in two, and I know it was not the last blow that did it, but all that had gone before.
~Jacob A. Riis
Blog Archive
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2010
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Apr
(23)
- Made it to Thursday !Things are looking up ! Mar...
- Saturday Marky was invited to ride in a 1952 Army ...
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- Tuesday morning at Markys:everyone lived thru the ...
- this is sammy talking....markys transcribing for h...
- MONDAY EVENING MAYHEM CENTRAL :SAM JEANES CAME HOM...
- MAYDAY MAYDAY !Just reporting in on the latest Je...
- Sunday Afternoon in Markys world:So, Friday James ...
- Friday in Markysworld--Just got a call from James....
- THE MAKE-A-WISH "WISHGRANTERS "HAVE MADECONTACT WI...
- Hi Friends !Sorry about the blackout ! Our home ...
- Hi to all of Markys Buddy'sIt's Tuesday...day afte...
- Good Saturday Morning to all of Markys Buddys !Mar...
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- HEY EVERYBODY--MARKY WENT TO SCHOOL TODAY !This is...
- SO MUCH FOR PLANNING AHEAD !Marky has a respirator...
- HAPPY EASTER FROM MARKYSWORLD !Hope you are all fi...
- MARKY'S....UNPLUGGED ! YAHOO ! ! !Wednesday Marky...
- Here's a Re-print from the "early days" of the blo...
- Happy April Fools Day!I love April 1st ! I got up ...
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Apr
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2 comments:
Hey Nettie,
It does my heart good to see those pictures of Marky at school! I am so happy for him! He is such a trooper! I think it's very cute that you got a call from him saying he missed you. I think I will experience a touch of that separation anxiety next week when Zoe goes back to school. She's been my little appendage for the last 3 weeks. She continues to improve every day and is starting to look like her old self. She says she is going to miss her purple eyes :) I wonder if Marky is going to miss his cheeks? Maybe it's just their badges of courage, a little reminder of what they have been through? Anyway, I'm just so grateful that we have both been recipients of God's love and experienced these miracles. I read your blog all the time and your family continues to be an inspiration to me. Thanks for checking in on Zoe!
Love, Tricia
What a delight to look at the side-by-side photos of Marky currently at the top of the blog! One is of a brave boy with tubes, patches and scars and the other of a happy boy busy at school. What a miracle Heavenly Father has worked on your behalf! Thanks for posting these photos Ken; from a wishing star to a rising star! :)
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