Sunday, October 3, 2010
Posted by Markys mom at 12:07 PM
Labels: sam "scoots over"-see below
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This is an ongoing story of our family as we struggle day to day. Marky has a very rare disease called retro-peritoneal fibrosis which simply means there's a fibrous coating of crud all over his organs. His prognosis is unknown, since the disease is so rare. We appreciate all who visit Marky's blog and thank you for your love and support.
1 comments:
Gluten is terrible....but if it makes Marky's life better...then no more of it. Remember Camille Johnston from the C. R. 3rd? She has ceiliac's disease and has learned to live with it. I love Sam's pictures and your comments about Primary Children's. Please take care of yourself and all the boys in your family....Love, Grandma Joan
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