This morning Mark is headed to InterMountain Hospital for a PET scan as the CT Scan last night was inconclusive.
Friday, December 18, 2009
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This is an ongoing story of our family as we struggle day to day. Marky has a very rare disease called retro-peritoneal fibrosis which simply means there's a fibrous coating of crud all over his organs. His prognosis is unknown, since the disease is so rare. We appreciate all who visit Marky's blog and thank you for your love and support.
Our Valiant Little Warrior
Donations
Amazon Best Seller : "Master of Emotion" ---written by Marky's Aunt DeAnn O. Huff.
--All proceeds from this book go to help with Marky's --Medical expenses!
http://www.amazon.com/Master-of-Emotion-ebook/dp/B006JNAX2M/ref=sr_1_1?ie=UTF8&qid=1323787380&sr=8-1
**You can also go into any America First Credit Union branch in Utah, to make a Tax Free donation. The account is listed as, "Mark Jeanes Charitable Donations Account". ***
--All proceeds from this book go to help with Marky's --Medical expenses!
http://www.amazon.com/Master-of-Emotion-ebook/dp/B006JNAX2M/ref=sr_1_1?ie=UTF8&qid=1323787380&sr=8-1
**You can also go into any America First Credit Union branch in Utah, to make a Tax Free donation. The account is listed as, "Mark Jeanes Charitable Donations Account". ***
Favorite Thoughts on Hope
Fall seven times, stand up eight.
~Japanese Proverb
He conquers who endures.
~Persius
Nothing says I Love You like a clean toilet to throw up in!
~Author unknown
The race is not always to the swift, but to those who keep on running.
~Author unknown, in reference to Ecclesiastes 9:11
Don't be discouraged. It's often the last key in the bunch that opens the lock.
~Author Unknown
Big shots are only little shots who keep shooting.
~Christopher Morley
Look at a stone cutter hammering away at his rock, perhaps a hundred times without as much as a crack showing in it. Yet at the hundred-and-first blow it will split in two, and I know it was not the last blow that did it, but all that had gone before.
~Jacob A. Riis
~Japanese Proverb
He conquers who endures.
~Persius
Nothing says I Love You like a clean toilet to throw up in!
~Author unknown
The race is not always to the swift, but to those who keep on running.
~Author unknown, in reference to Ecclesiastes 9:11
Don't be discouraged. It's often the last key in the bunch that opens the lock.
~Author Unknown
Big shots are only little shots who keep shooting.
~Christopher Morley
Look at a stone cutter hammering away at his rock, perhaps a hundred times without as much as a crack showing in it. Yet at the hundred-and-first blow it will split in two, and I know it was not the last blow that did it, but all that had gone before.
~Jacob A. Riis
Blog Archive
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2009
(43)
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Dec
(43)
- Happy New Year; There is never an uninterestin...
- - A note from Marky's big brother Scott, ...
- Today at the PMC amusement park: Mark had a very...
- No title
- Semper Fi! Means..Always faithful!This hat was gi...
- This is a view of Marky's multitude of "lines" ke...
- FYI---Refer to previous "Tues post's" about "runni...
- Speaking of "running buddies",I remember a particu...
- Words of wisdom from Marky' cousins, Brooke and B...
- Tuesday in Markysroom--- I so love reading all of ...
- Yesterday the surgical team visited Marks room and...
- Monday morning--from Markysmom, Still waiting for ...
- No title
- Sunday night in Markysroom! Markys big accomplishm...
- Marky says Hi to all of his friends!
- Saturday morning in Markysroom---- Marky managed t...
- Hi everyone!Just thought we'd put up some fun pict...
- No title
- Christmas Day from Markysroom-- The true spirit of...
- No title
- No title
- From Markysmom on Christmas Eve Merry Christmas to...
- Merry Christmas to all!!!For your information we h...
- Please know how deeply moved and appreciative the ...
- In Mark's surgery today they found spindle cells i...
- Well, it looks like things have taken another turn...
- Today was another difficult day for Mark as he und...
- Mark is back in his room and the Onologists have v...
- Mark is headed to surgery for his Bone Marrow Biop...
- Today so far has been a pretty good day off for Ma...
- Mark Jeanes having been originally scheduled for t...
- Friday night:First of all, Thanks to all of you fo...
- This morning Mark is headed to InterMountain Hospi...
- Mark's Special Visitors
- Please join us in a special fast for Mark and his ...
- Mark is having his second CT scan to pinpoint wher...
- The oncology team has a preliminary diagnosis of B...
- I just got word that Mark is out of surgery. Jame...
- Mark had an ultrasound and we are awaiting results...
- Please remember Mark in your prayers. Today he get...
- Mark had a cranial MRI late this afternoon and as ...
- Wednesday Update
- This website has been set up to keep friends and f...
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Dec
(43)
4 comments:
First of all, Thanks to all of you for your prayers and support! This would be impossible to bear without your many kindnesses.
Tonite, Mark is more "perky" than I've seen him for days. We had a "field trip" to Intermountan Medical Center for a PET scan.
The report was that STILL a mass cannot be found! Only a train of Lymph nodes lit up on the scan on his neck. Apparently not "hot" enough to impress the Doc's.
So Sat. morning he will undergo a bone marrow biopsy to continue the "fishing expedition"!
In otherwords, the diagnosis of Burkitt's lymphoma has been deleted from his list. He returns to the "unsolved mystery" club.
He continues to maintain his stellar courage and will to fight. An example to all of us!
As we got back in the transport vehicle to return back to Primary"s, He informed the driver that "Primary'S" had burned down and that he should just drive us home instead!
Tonite each time his nurse enters the room, he pretends to have a seizure by shaking and gagging. When she reacts with shock, he gets a little grin of accomplishment!!!
I realize the high probability that his improved status today is a direct result of blessings upon him that have been pleaded for by all of you. And I send my warmest thanks and wishes for love and happiness in each of your families.
Goodnite, Marks mom
What an AWESOME example Mark is for all of us. He is so courageous and such a fighter! Good thing he has his ENCOURAGING momma right there beside him. We love you all and will continue to pray for the Lord's hand to be with you through all of this. You will witness many of His tender mercies along the way. Continue to count your blessings :) We surely count your friendship as one of ours. Lots of love! From the Morris Family
Hugs and kisses for all! Love you guys. Sending lots of prayers your way. Barb
MARKY ROCKS!!!!
We love you and miss you! You are the most courageous and sweetest BIG Boy in the whole world! Our prayers are with you.
Love The Reds :)
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