Thursday, January 14, 2010
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This is an ongoing story of our family as we struggle day to day. Marky has a very rare disease called retro-peritoneal fibrosis which simply means there's a fibrous coating of crud all over his organs. His prognosis is unknown, since the disease is so rare. We appreciate all who visit Marky's blog and thank you for your love and support.
Our Valiant Little Warrior
Donations
Amazon Best Seller : "Master of Emotion" ---written by Marky's Aunt DeAnn O. Huff.
--All proceeds from this book go to help with Marky's --Medical expenses!
http://www.amazon.com/Master-of-Emotion-ebook/dp/B006JNAX2M/ref=sr_1_1?ie=UTF8&qid=1323787380&sr=8-1
**You can also go into any America First Credit Union branch in Utah, to make a Tax Free donation. The account is listed as, "Mark Jeanes Charitable Donations Account". ***
--All proceeds from this book go to help with Marky's --Medical expenses!
http://www.amazon.com/Master-of-Emotion-ebook/dp/B006JNAX2M/ref=sr_1_1?ie=UTF8&qid=1323787380&sr=8-1
**You can also go into any America First Credit Union branch in Utah, to make a Tax Free donation. The account is listed as, "Mark Jeanes Charitable Donations Account". ***
Favorite Thoughts on Hope
Fall seven times, stand up eight.
~Japanese Proverb
He conquers who endures.
~Persius
Nothing says I Love You like a clean toilet to throw up in!
~Author unknown
The race is not always to the swift, but to those who keep on running.
~Author unknown, in reference to Ecclesiastes 9:11
Don't be discouraged. It's often the last key in the bunch that opens the lock.
~Author Unknown
Big shots are only little shots who keep shooting.
~Christopher Morley
Look at a stone cutter hammering away at his rock, perhaps a hundred times without as much as a crack showing in it. Yet at the hundred-and-first blow it will split in two, and I know it was not the last blow that did it, but all that had gone before.
~Jacob A. Riis
~Japanese Proverb
He conquers who endures.
~Persius
Nothing says I Love You like a clean toilet to throw up in!
~Author unknown
The race is not always to the swift, but to those who keep on running.
~Author unknown, in reference to Ecclesiastes 9:11
Don't be discouraged. It's often the last key in the bunch that opens the lock.
~Author Unknown
Big shots are only little shots who keep shooting.
~Christopher Morley
Look at a stone cutter hammering away at his rock, perhaps a hundred times without as much as a crack showing in it. Yet at the hundred-and-first blow it will split in two, and I know it was not the last blow that did it, but all that had gone before.
~Jacob A. Riis
Blog Archive
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2010
(310)
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Jan
(72)
- Where Love Is
- 5 Good reasons to come home
- MARKY IS HOOOOOMMMMMMME ! ! ! ! Who woulda thought...
- Marky...........You Did it
- I'm outa Here
- 4 Good reasons to come home
- This is a very busy and exciting day for the famil...
- Today's approximated schedule of events.....For in...
- FRIDAY=......==the winning lottery ticket!=Christm...
- hay every buddy i'm out of here .....mark
- Thursday morning with MarkyMarkys been up since 05...
- Wednesday nite from Markysroom ! ! ! I'm afraid to...
- Aunt Lori just checked in from her night watch ove...
- Oh, Yeah,. . . Don't just check out the stuff up f...
- Hey you guys ! ! Are you checking out all the cool...
- Tuesday from Markysmom!!Mark is spending the day w...
- Be sure to check out the items in the auction site
- Monday Night from MarkysmomToday over 850 children...
- No title
- Don't forget Mark's Buddy Run today at 2:15 at Wil...
- Mark and Scott and Ken went for an extended stroll...
- Marky gets YET another special visitor !!!!He's go...
- BREAKING NEWS !!!!!MARKY JUST GOT HIS N/G TUBE OU...
- Flash: Mark is going to get his Tube pulled !!!!!!...
- We are lining up on the target! Dr Inman of the G...
- Thursday night from Markysroom--Today Marky had a ...
- It is High Noon in the room of the patient and the...
- Tonite Marky craved Creme Soda!!!So Aunt Lori made...
- Mom gives Markya bloody nose!!!This was thescene y...
- Tuesday Night from Markysroom!!!!Another day on th...
- Monday night in Markys room!Tonite Marky is restin...
- ............Marky's 49th Day
- We are holding an online auction to help raise fun...
- Marky's back "in-country" from Xray.They said his ...
- No title
- Saturday morning in Markysroom--Marky managed to e...
- No title
- Some fun things about today----Markys big brother ...
- Friday afternoon--Test results came back...No bloo...
- Friday afternoon from Markysroom--Markys blood pre...
- From Mark's room we are waiting for him to wake up...
- MARKY IS UP AGAIN!!!!He goes in for the Angiogram...
- No title
- Hey, If you are new to Markys blog, make sure you ...
- Wednesday Night from Markysroom---Mom is back on d...
- " Who's Mark Jeanes' Running Buddy" As you may kno...
- On Jan 8th, Marky was certified as anhonorary UPS ...
- These pics are worth a thousand words!.....No........
- No title
- Mark walked today!!!! 90 yards all the way to his ...
- We had a very special visitor today to lift Markys...
- Oh, yeah----Did you guys see the comments from our...
- And another thing---James said Markys tummy is 2.5...
- HI again everybody!Monday night----Marky seems to ...
- Monday, from Markys Mom--Thank you, everybody, fo...
- READ CHAPTER ONE FIRST!
- Chapter two----While we excitedly paced the floors...
- Sunday Morning From Marky's Mom---Last Thursday ni...
- Good Sunday Morning, Just a quick update; Mark h...
- Good morning from Mark's room where the "team" met...
- Good Evening to All; Mark has been doing fairly...
- New information to report on Mark comes primarily ...
- Tuesday Morning in Markysroom--My friend Diane, or...
- Monday Night--Jan 4, 2010The much anticipated word...
- Marks Big Brother, Scott, Let me tell you about th...
- MONDAY MORNINGIN MARKYS ROOM-- STILL NO WORD FROM ...
- GREEN BERET MOTTO: De Oppressor LiberWhich is Lati...
- SATURDAY IN MARKSROOM---Today Mark had a surprise ...
- MARKY'S FAVORITE JOKE OF THE DAY-- Q; WHY WAS THE ...
- MARKY SAYS-----I'M ALL TANGLED UP !!!! GET ME OUTA...
- No title
- "SOMETHING FUN__FOR A CHANGE!" A hospital delivery...
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Jan
(72)
3 comments:
marky, you look so much better and you even have a little smile on your face. that made me smile. You are such a brave boy! Sonia Hunt
I love seeing Marky in the standing position after seeing him only in the laying position for so long! How Great! Love ya Marky!
Larsen's
Amen. Marky, it's totally awesome to see you on your feet again! Now we can tell a bit better how tall you're getting. :) Love you Marky!
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