Tuesday Morning in Markysroom--
My friend Diane, or Duke, as she likes to be called, left a quote the other day for us. It says:
When you come to the end of your rope--
Tie a knot and hang on!
I think I screwed up and tied a slip knot....just sayin
This is an ongoing story of our family as we struggle day to day. Marky has a very rare disease called retro-peritoneal fibrosis which simply means there's a fibrous coating of crud all over his organs. His prognosis is unknown, since the disease is so rare. We appreciate all who visit Marky's blog and thank you for your love and support.
Tuesday Morning in Markysroom--
Posted by Markys mom at 7:05 AM
16 comments:
You're the best 'knot-tier' I ever met! It's not a slip knot either. Your faith is an incredible example to us all. Heavenly Father knows what He is doing. Trust Him. Someday we'll understand why this has happened and like handcart pioneer we'll be able to say something similar to: "Was I sorry that I chose to come by hand cart? No. Neither then nor any minute of my life since. The price we paid to become acquainted with God was a privilege to pay and I am thankful that I was privileged to come in the Martin Hand Cart Company." I know it's hard right now, but keep holding on. Love you Nettie! Cathy
I love Cathy's comment. We just love you guys so much and we are all below to catch you if you slip off that rope, even if just for a minute! You are such a fighter and will take a breather and grab back on. I can't wait to come up and see Marky when we are all healthy again. Jonah is missing him like crazy and asks everyday if we can come up. Soon.
Jen Larsen
Oh Lynette, My heart aches for you today. I love Cathy's encouraging words. I'm sure there is much to be learned from all of this. And I say amen to all the great things you said about Scotty! He was at our door just a few minutes after we pulled up with the moving truck and was such a big help when we moved in. I thought what a special young man to be so mindful of the service needed by others, let alone us whom he had never even met before. And I remember when Mark and Jonah came to the door and said, "We heard you have a 7 year old boy." Benson hid behind the corner that first time, but they were such nice boys and I'm so glad they got to be friends. Marky was the one who I knew would help my little guys when I sent them off on the bus that first day of school. You really do have some of the sweetest boys I've ever met. That says alot about the parents that you and James are too. We feel so blessed to have landed here on Stonepark Circle and to be surrounded by such wonderful people like you. We'll keep praying for Marky and your family and all the doctors who have been entrusted with his care. Love you all! Jana
ps I'm thinking that parachute may not be a bad idea after all... :)
Lynette, Just remember your rope is VERY long and and their are hundred of knots tied in it all along the way and each one of those knots belongs to each of us and we will catch you if you fall a little. Don't give up-Heavenly Father is in control and will take care of all of your needs. It is He who has your life and Marky's life planned. THE Jeanes family is such a great example to so many people and we all love you so much. You are all in our thoughts and prayers constantly. Much love, Aunt Dianne
Lynette- Again, so sorry that this has become more frustrating and discouraging. What a huge trial! If anyone can do it, YOU CAN!!! And to repeat whats already been said we will always be here to catch you when you fall. We love you all and are blessed to call you friends :) I drove Scotty and Kaden around on Sunday to do Fast Offerings. It was fun to spend time with them. We invited Scott over for stew b/c he could smell it on Kaden's jacket :) But your sister pulled up right behind us to pick up Scott. We'll have him over anyday for dinner. Marky is such a trooper and such a patient one at that. Continue to learn from his example, what a sweet boy! We love you! You need that cd back so you can listen to those songs I gave you.
What are the limitations now on visitors for Marky? Porter wanted to come up and see him but I wasn't sure if he could. Please let me know. Love you~
Hi Jeanes family!
Just wanted to let you know that Nick and I are praying for all of you, and for Marky's recovery. I've been so impressed by you in the past, and what I've learned is this: if anyone can make it through a trial this big, it's you.
Lots of love and continued prayers,
Tamsin
We all know Lynette is an amazing woman, but let me tell you.... I go to visit at the hospital today. She looks exhausted and at the end of her rope. She tells me she barely slept lastnight because Marky was so miserable and didn't sleep more than 10 minutes at a time. Then she goes on to say "did you get a haircut?, you look cute. Is that a new necklace? I like your boots". Here she is exhausted and worn out from watching her little boy suffer and she has the strength to try and make ME feel good. Love you Lynette. Thanks.
Lynette,
My heart aches for you, for your family, and especially for Marky. We miss him so much in Primary. He will continue to be in my prayers. You are such a great example to me and I admire your strength.
I have a joke for Marky when he's up for a laugh. (It's the only one I can ever remember.)
"Why do fish swim in salt water?"
"Because pepper makes them sneeze!"
Lots of love, from the Ballards
Lynette, I love you so much!!! Your comments crack me up, they sound just like you!!! We think of you guys all the time and hope that Marky will get well soon!!
Love, The Kelschs
Hang on Picky. Let others prop you up for a while, OK?
Barbie
Lynette, we love you so much and are praying for you all .I really wanted to come visit Marky but Ive had a cold and so waiting till Im definitley clear. Hang on tight beautiful lady,your an incredible person and we know if anyone can make it you and your family can. Elder Wilsher is praying every night for Marky, he told me to send his love to you all xxxxx
It always seems like things are the hardest, and you just can't hang on any more just before they get better. I'm hoping this is your turning point. I pray Heavenly Father will send a special angel your way to provide the needed help to get Marky better.
I loved visiting with you yesterday. As always you were the one to make me feel better...I was supposed to be the one doing that! Hang in there all of you. We are praying for your health and welfare. We love you.
love,
Deb
I was just reading my best friend's blog (Jodi Brown) who is recoving from a brain tumor that they said what inoperable. She spent over a month in the hospital, and like she said, almost died many times. She still struggles with many issues, but is much better. She is a young mother of 4. I thought I'd share what she posted on her blog. Hopefully it will give you a little hope and comfort. There will be a light at the end of the tunnel, and sometimes we find blessings in the most unusual places, but Heavenly Father knows and loves us all.
Here's what Jodi had to say about her experience:
"It is with many mixed emotions that I said "good bye" to 2009 and welcomed in 2010. Charles Dickens started out the book, A Tale of Two Cities, with a paragraph describing the state of things, ending with "It was the best of times. It was the worst of times." That is exactly how I feel about the year that just ended.
There were days when I felt like I was deeply in the worst of times. There was pain, sickness and tears that I could never could have anticipated. There were nights when I thought I would never leave the hospital. There were moments when I said good bye to my family members, sure that our time together on Earth was over. The emotions are so deep that I cannot really say how I feel inside about those times.
But most of the year was filled with the best of times, times that could not have been experienced without the challenges. There were so many miracles and blessings that my life has literally been transformed. Though it is not a visible transformation, I can feel everyday that I am a new person. I have been blessed by people around me, by people far from me, by people I have never met. These people, the angels in my life, have blessed my family and helped us have miracles.
My young children have learned, grown and we have been strengthened as a family. Tolan and I are closer than ever before. We know we can make it through anything. Is all of this worth the trials of a brain tumor? Is it worth the pain? In my mind, it is not only worth it, the challenges are the blessings that brought about the miracles.
So, I guess you could say it was a good year, a very good year. Here is to much more good in the year to come!"
Hi! you don't know me but your blog was forwarded to me by my bestest friend Becky Driggs. I just wanted to tell you that the Ogilvie family (as we are known here in St. George) are on board to pray for Marky! I understand the slipknot comment....sometimes referred to as a "frayed" knot. Just know that there are lot's of little fibers that make up a knot...even a frayed one...and you only need one to hold you up. He is there for you. Angels surround you and Heavenly Father loves Marky and he is in His hands. I know what spending a month at primary childrens is like...not fun. And I also know that you would take the pain and problems Marky is having away in a heartbeat. I know this because I am a mother too. I lost a 15 year old son just 7 years ago to an unknown cause of death. He just left this mortal life and went home. But through this time, I have learned a lot about knots and a great deal about people who will gladly lend you their knot for awhile if you need it. I don't even know you personally and I would gladly lend you my knot anytime you need it. It's hard to believe, but sometimes our greatest lessons are learned from our greatest trials. Here's a joke for Marky from our family.....
"The other morning I was woken up by an old lady pounding on the door....so I got up and let her out!" Hang in there and we will keep in regular contact...someday we will meet. Heavenly Father has a way of sending Angels just when you need them most. Love to you all, The Ogilvie Family in St. George. Paul (Dad), Marcie (mom), Chelsea (20), Levi (17) Ashlee-Jade (13), Jessica (13) Trevor (11) and Chloe (6).
Hi Nettie, It's Brookie here down at college. You Jeanes people are on my mind constantly. I want to share a story with you from Sister Elaine S. Dalton's CES fireside that she gave at the beginning of this school year:
Agnes Cromwell was an early saint crossing the planes. One cold winter day, the little girl desperately wanted to ride in one of the relief wagons. The driver asked if she wanted a ride and she gratefully said yes. The driver reached down to take her hand, but instead of pulling her into the wagon, he whipped the mules and made the cart lurch forward, pulling little Agnes along with it. Agnes ran alongside the cart until she felt that she could go no further.
Finally, the driver slowed the cart and pulled Agnes into the cart. The driver knew that by making little Agnes run, she would generate enough body heat so she wouldn't freeze to death from sitting in the cart! Agnes didn't realize this while she was running, but she still ran-she didn't give up!
Heavenly Father, like the driver of that cart, knows things that we don't know sometimes. Right now, Nettie, your driver is making you run as fast as you can for reasons we don't know. Don't forget that He knows why. Most importantly, never forget that He is holding your hand, pulling you along!
Love, Brookie
Jeanes Family:
There aren't words to express our sadness for all that is afflicting your family. Please know that our family loves you and is praying for Heavenly Father to bring you all peace and miracles. Lynette, I think you are seriously muddy buddy deficient and I shall fix that asap! Lots of Love! The Glassett Family
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