GLUTEN IS DUMB !
Thursday, September 30, 2010
Posted by Markys mom at 6:13 PM
The Little Warrior is home from the battle field !
He made it back to his bunker this afternoon.
The battle field assessment and de-briefing report alledges but cannot confirm or deny: new meds to settle down the suspect celiac disease, heavy pain killers temporarily and an emphasis on Gluten free dining.....FOREVER !
He will continue as before on the Methotrexate injections once a week (given at home) and Remicade IV therapy every 8 wks up at PCMC.
An MRI done this morning didnt show anything significant, thankfully. And the Biopsies done during the scope were mostly good too, according to James who was there to hear it all from the Docs.
I worked my 12 hr shift today and missed the whole hooplah. But was there in spirit, as most working moms are relegated to be.
This short stay at Primary's I know is largely due to the many sincere prayers from all of you on Marky's behalf. I fully acknowledge God's healing power and tender mercy with each day we are graced with.
Love to all of you, netti
Posted by Markys mom at 5:33 PM
Wednesday, September 29, 2010
Posted by Markys mom at 7:32 PM
Posted by Markys mom at 6:59 PM
Posted by Markys mom at 5:08 PM
Wednesday 11:30 am--
Posted by Markys mom at 11:26 AM
Markys pain returned last night with a vengence.
He was actually admitted to Primarys as an inpatient this time for more agressive pain control and tests.
James took him up there and I stayed with Sam and Scott.
The Dr. said they would likely do some kind of scope on him today to see anything .
Last night before they left, Bishop Rupp happened to be here dropping Scotty back home after home-teaching.
We invited him in to give Marky a blessing before he went up to the hosp.
We all sat at the foot of the bed while Bishop Rupp layed his hands on Markys sweet head.
Shortly after Bishop started with his prayer, our "angel Sam" very softly crept across the bed and got up on his knees next to Marky and PUT HIS HANDS ON TOP OF THE BISHOP'S .
He assisted reverently until the bishop was done.
I was amazed at the sight of this dear heavenly angel helping to minister unto his brother.
A task i'm certain he came to this earth to do.
All that the bishop said after he took his hands down from Markys head was ....
...."Thanks for the help, Sam ".
It was a moment i will treasure all my days.
Wish you couldve all been here to see and feel .
Love you all. Netti
Posted by Markys mom at 6:07 AM
Tuesday, September 28, 2010
The CT scan showed a small amount of ascites (fluid hanging around in places it doesnt belong) in his abdomen....otherwise nothing significant.
His pain was progressing as the night continued and he received two doses of Morphine.
The docs are uncertain of the cause of these current symptoms.
perhaps its the "undiagnosed" celiac disease. Or maybe the nasty sclerosing fibrotic crap raising cane again.
If you remember, non of the diagnostic scans ever showed any of his disease before.
Only the exploratory surgery.
At 1:00 this morning we left for home with prescriptions in hand.
A round of steroids, some kind of non-narcotic pain meds and something else i cant remember.
I had to be at work at 7 am today, so James will manage the care of the boys.
Posted by Markys mom at 6:44 AM
Monday, September 27, 2010
UPDATE at 8 pm, Monday night----
Posted by Markys mom at 8:03 PM
GOT MARKY UP AT PCMC ER :
Posted by Markys mom at 4:27 PM
Saturday, September 25, 2010
No change in Marky's status.
He's no worse. That's good
No Better. Not so good
His buddy Jonah came over last night to cheer him up and play a little.
Jonah keeps a vigil over Marky and reports any signs of anything when it comes to Marky's condition.
He is a devoted friend and is so amazing to watch as he worries about Marky.
Im working again this morning. When i get home i'll assess the patient and try to decide whether to take him up to PCMC.
Something is not right. Can feel it in my gut. And his eyes are sunken and glassy. He feels like throwing up all the time. His headache is better, no spots anymore. Just complaining of "crappiness" and nausea and his liver hurting.
Ive been nervously eating all the cookies at work and raiding the fridge for Diet Coke ! ......What else can I do !
Posted by Markys mom at 10:58 AM
Friday, September 24, 2010
Friday the 24th of September:
Marky's been ill all week with a headache --seeing spots, and nausea.
He says his "liver hurts".
We've been on the phone every day with the Docs up at PCMC trying to figure out what to do.
He had his Remicade infusion last Fri. and has been feeling crappy ever since.
They drew a bunch of blood for lab work and it is all looking good, they say.
So we are all pacing back and forth ringing our hands with worry.
ESPECIALLY ME !
I asked him last night if he thought I needed to take him up to the hospital.
His reply was....." you probably better , cause my liver hurts" !!
I grabbed Scotty and we all knelt in prayer. Scott prayed for him to feel better and all that other good stuff. (I always make them pray in times of peril---I tell them that God listens to a child's prayer WAY BEFORE a dumb adult's ! )
I did not take him up to the "mountain" yet. Still wringing my hands. But have another call into the Docs at Primary's.
Keep ya posted.
Pray for Marky, please..........Lynette
Posted by Markys mom at 8:49 AM
Friday, September 17, 2010
Marky is back in "Theatre"....
Posted by Markys mom at 3:05 PM
Posted by Markys mom at 2:57 PM