Sunday, June 27, 2010
Posted by Markys mom at 6:40 PM
yo peeps greetings from marky
Posted by Markys mom at 6:20 PM
Tuesday, June 22, 2010
Tuesday June 22nd in Marky's world---
On Saturday Marky was invited to be a VIP at "Fort Douglas Day's" annual parade and open house.
Fort Douglas is an Army depot up by the University of Utah..
He was treated like a king. Got ride up on a big 'Deuce and a half', which is a big army truck that transports guys and big guns and all that cool stuff.
He got to shoot off a cannon of some sort. They told me the caliber, but it didnt register in my non-guy stuff brain. But it sounded big !
He also got to shoot a machine gun and ride in their parade !
LUCKY ! ! ! All this is part of the Make-a-Wish happenings that are starting to come together !
The guestimate of the Jeep arrival is somewhere around 3 wks from now.
We are Sooo excited ! As you can imagine.
Posted by Markys mom at 1:54 PM
Tuesday, June 15, 2010
TUESDAY June 15, 2010
Just reporting in on the latest happenings with Marky Jeanes.
He's been mostly well. Just a small cold/cough, and intermittent
"crappy-ness". But still keeping his chin up and staying positive.
The Make-a-Wish "granters" have resumed the search for a Jeep now that the Army mission has failed.
I located quite a few jeeps on the internet for sale from "civilians" and gave the info to the "wish granters" . They assured me that they would move forward and take care of things so I wouldnt have to.
I told them i was perfectly okay to pursue the "wish" if they hit any snags. We'll see what happens.
In the meantime, it's like the "tooth-fairy" scenario every nite at the MarkJeanes house ! He goes to bed each nite wondering if "Tomorrow" will be the day ! ? ? ! So he is very anxious. And if He's anxious...I'm anxious !
Next week on the 23rd of June, Marky goes up to PCMC to get the EGD scope thingy down his throat to check the cells on the inside of his stomach. They're looking for Celiac disease stuff, and any other clues that may help solve the mystery !
I believe he will continue to be a mystery and just be "managed" as a kid with a weird "auto-immune" disorder that happens to be responding to a "hail-mary" treatment idea............which i'm SOOOOO GRATEFUL FOR !
Posted by Markys mom at 9:55 AM
Saturday, June 12, 2010
Hi Everybody !
Thanks for all the great Birthday wishes !
As most of you know, i share my birthday with my twin, Lori.
She entered this world 5 minutes after me. I was grateful for the
companionship, as i had three (3) older brothers waiting in the wings
to torture a little sister !
I turns out that wasnt the case at all. Our three brothers adored us
and still do. We think they're pretty cool too, with few exceptions !
Yet, my little sister, Lori, was and continues to be the one that carries
the weight of our sojurn !
She rescues without hesitation.
She answers my relentless cries for help.
She offers support and a shoulder to cry on.
She understands charity and pure love.
She demonstrates charity and pure love.
She is all that i hoped i could be.
She is all that i wished i could be.
I owe her an eternity of gratitude for her companionship. And i will
ever be her loyal envious friend and sister,
Happy Birthday, Lori ...........Love Lyn.
Posted by Markys mom at 11:53 AM
Wednesday, June 9, 2010
Hi to all of Marky's buddys
Summer's in full swing mostly. Markys is trying to keep up with the
neighborhood kids running back and forth house to house !
Wish I could run with em ! Dont you !
He is in great spirits, yet asking every day if his "Make a Wish" is coming soon........
Speaking of that....i received word that the "Army Jeep" wish had been
denied by the U.S Army. Apparently the army will NOT allow any equipment to be allocated to any civilian for "liability" reasons.
EVERYTHING is a possible LIABILITY !
This Life's a huge liability.
What if a young boy with an uncertain future were to actually have some kind of repreave and respite from his "crappy" feeling day to day life of
pain and limitations ? ?
Now the walls are caving in on this young boys living situation, ie, home and community of friends and family and the bank wants to put us out.
How about taking a risk, ARMY GUYS, and weigh the options of your
LIABILITY of helping a young boy get his wish of some scrap metal
frame of a beat up, non-working army jeep !
The Army continuously weighs options and liabilites and outcomes.
They continuously take risks for the good of our people and precious
But they cant take the RISK of putting a dilapidated old jeep carcass
in a little kids' backyard and "make his wish"
I have EVERY respect for the U.S. armed forces. Our freedom and opportunities are a direct result of their risks.
I just think we as a society have over "liabilitied" ourselves into a little tiny corner .
A corner called "INABILITY".
If any of you know of an old jeep that I can purchase and paint/camouflage to look like an army issue, please contact
Posted by Markys mom at 2:07 PM
Wednesday, June 2, 2010
Wednesday June 2
Marky's Remicade experience went "great"----in his words.
The IV "blew out" the vein in one hand, so they moved to the
I asked him if it hurt when the vein blew, and he said,
"No, it kinda tickled" ! Oh come on ! !
I think his Dad told him to say that so I wouldnt freak out.
Marky spent the Memorial holiday feeling "crappy" and tired
and just plain worn out-looking.
Yet, overall, it was an uneventful weekend.
Uneventful is FANTASTIC in the Jeanes Home !
It means......no one went to the hospital or Dr. !
Scott returned from a weekend with his Dad, Mike. HE probably
couldve gone to the Dr. to stitch up the gashes on his shin from
trying to negotiate a river bed with his mountain bike.
Hope you all got some relief from your everyday rif-raf too.
Posted by Markys mom at 8:09 AM