Thursday, December 30, 2010

Sending out Happy New Year wishes to all of Marky's Bloggers---

He is laying in bed, the last few days, with Strep throat ! Started on Tuesday.

Went to Doc on Wed., got the "Gag" test and confirmed it. He's gotten Strep so many times this year. All the immunosupressent (cant spell that one) drugs leave him wide open for all that cruddy stuff.

On Monday night, though, Marky got to go to a holiday party with big bro Scotty!

The "other" half of Scotty's gene pool is the Cole family.

I couldnt have asked for a better family to be connected to. Grandma and Grandpa Cole treat all three of our boys as their own.

So this year for their holiday party, they invited Mark to come. They have all been actively praying and worrying over Marky this past year, and he felt good enough to make a "celebrity" appearance. Grandma Cole picked Marky and Scott up and brought em home too. They had a blast.

It was one of the "Cole/Fidler" sister-in-laws, Brianne, (sorry if i spelled that wrong, Bree) that organized the "OnLine" Auction for Marky last winter.

And recently, Grandma and Grandpa Cole surprised Marky with a beautiful hand made quilt they had worked hard on for months. They even brought a little sweet one for Sammy too.

Sammy immediately grabbed a flashlight and crawled under his blanket to hide while he looked at the cute little monkeys patterned in the fabric!

The arrival of the quilt was just in time for Marky's last stay in the hospital. We wrapped him up in it to haul him in and out of the battle-field. And it kept him secured while he layed in bed up there.

They are a dear family and we so appreciate their love and support.

Hope you all have a HEALTHY New Year ! We're gonna try !

Love to all, Lynette

Friday, December 24, 2010


Marky is fast asleep....IN HIS OWN BED (not the hospital!)

He has "visions of sugar-plums dancing in his wee little head".

The plate of (GLUTEN FREE of course) brownies and milk are awaiting their Christmas eve guest.

The stockings are hung and ready for the customary orange to be stuffed into the toe !

All is right with the world, in Markys world !

Im reflecting on the dear children that will be up at PCMC tonight. Perhaps like Marky was last year...too sick to be home..worrying whether Santa will find them up there....Or too sick to even open their presents, like Marky was last year.

Scotty helped Marky open his gifts last year. He didnt have the strength to do it. He just layed, listless in his hospital bed.

The exploratory surgery had happened 2 days before Christmas, last year. James and I spent the night beside our dear boy. Sam was with Aunt Lori, or Uncle Ken.

I will never forget the spirit of Christmas felt that night in the hospital as the group of Resident Doctors that had been so attentive to Marky, came to his room and brought gifts for us.

They wore Santa hats and had made plates of treats to share with us while they were on duty caring for our boy. Most of them were away from their families for the holidays.

We became part of their family as we were brought together during those worst of times.

They showed us compassion and love beyond their "Titles" of Doctors.

I remember them tonight, with my own compassion and love, wherever they are.

Merry Christmas..
...especially to our Primary Children's Hospital Family.

My prayers are for all the dear children laying up there waiting for Miracles of their own.

That they are comforted and relieved of their pain and suffering.

That angels will not cease to attend them.

That promised tender mercy's hurry to their bedside.

Love Lynette

Thursday, December 23, 2010

Christmas Eve Eve---

Afraid to say it outloud.....but looks like Santa will be visiting us at home this year !

Marky is feeling great, since his honorable discharge last week.

He's taking oodles of ex-lax every day, and that seems to be doing the
trick. We D/C'd the use of the Miralax.

No pain reported....unbelievable.....miracle!

Hope all of Markys Buddys have a miraculous Holiday season full of fun and good health.

We love you. Lynette

Saturday, December 18, 2010

HAPPY BIRTHDAY!! To our family's "guardian", Ken Crocheron !

Ken quietly serves the Jeanes people daily with just about anything there is that needs to be taken care of.

He's a surrogate Uncle, a Harley Dude, a Green Beret, a HALO paratrooper Jump-Master, a gifted wood turner, A talented musician who sings like Pavorati, and plays Violin like..that one guy thats famous whose name I cant think of right now !, has a way with kids, and has the biggest heart of anyone i know.

We became friends with the Crocheron's several years back when their boy, Nate, was younger.

Nate used to come over and swipe Coke's outa our fridge and hang out w/ us !

They are like family to us now.

Vickie, the CEO of their family, tutors Marky a couple of days a week to keep him caught up with school stuff. She is an angel in so many ways to us. PLUS, she's a RED-HEAD ! Of course she's an angel !

So today, the 18th...Ken, the Colonel,.....

HAPPY BIRTHDAY ! And thanks for carrying us. You are loved and appreciated..

Marky's troop.

Friday, December 17, 2010



After all the tests and hand wringing and coins tosses, the little warrior was released.

The surgeon was not comfortable opening him up, without more convincing evidence. Thats good....convincing evidence is NOT good.

Marky was referred to an "integrative medicine" Doc who deals with chronic pain .

The colonoscopy that showed some weird stuff is now being deemed a mystery. None of the other tests supported what the colonoscopy showed.

As always.....a mystery !

But Marky is home and cheerful. He hasnt eaten any solid food for 3 days, just liquids. So today he's eating well, courtesy of aunt Lori.

We will be home for Christmas ! No need to transport Marky's portable chimney ( from last years stay) up to PCMC. Markys cousins crafted the beautiful, authentic-like chimney, complete with stockings, simulated wood fire and brick -like motif !

We will continue to enjoy it at home !

Wednesday, December 15, 2010

Dont believe the "sad" face. He's been playing "HALO", the x-box game for 2 hrs straight with our home teacher !

He's just tired from killing everything !

Wednesday with the "Champion"---

Waiting for the docs to decide who's going to do the surgery and when.

They want the same surgeon that opened him last year (Dec. 23) to be the guy that goes in again. He remembers Marky and the complex maze of fibrosis covering everything.....makes sense.

EXCEPT....this surgeon is either got his sched. full, or is off, or whatever the reason. So the ranking officers are doing what they do best...
wringing their hands and tossing coins !

The Barium Enema was excrutiating for Marky. We handled it by "leaving" the hospital and pretending we were on Ken Crocherons awesome boat ! We were in the boat cruising Bear Lake with the wind in our hair. I bawled my eyes out at his courage and discipline. I used up 8 million tissues while i stood at his side trying to comfort him. was him who kept saying....."we're on the boat mom, we're on the boat ."

Then around 6pm they did an MRI (un-sedated!, for all you chickens who have to get zonked to go in "the tube"). Again he was a champion.

His IV blew and had to get a new one poked. He had to hold his breath for 30 seconds a ton of times for each sequence of images....WHILE he was trying not to throw up, AND was in immense pain !

Later last night our Bishop came . He ALWAYS shows at just the right time. He gave Marky a beautiful blessing .

In the blessing, he referred to Mark as a "Champion of Faith" that is here to teach us all.

The Lord does know us.......Especially this sweet child.

Tuesday, December 14, 2010


Doc's have admitted him. We are waiting to the guys to come get him for the Barium Enema any minute. Then, later today, they will do an MRI so the surgeons have every opportunity to know what they're going in to do.

The surgery will likely happen tomorrow.

He is being made "comfortable" with IV Morphine to finally get relief from his pain.
Im finally getting "relief", now that he's relieved from his pain !

Aunt Lori will take over as "Aunt Lori" always does. She will scoop up Sam and Scotty and throw em in the mix with her family.

Thanks for all your prayers and support. You ALL mean so much to us.

Will keep you updated.


Tuesday the 14th with Marky ---

Still waiting to get the Barium thing scheduled. Then the surgery can proceed.

Marky bravely went to a half day of school yesterday.

He didnt feel up to it, but he went anyway. I told him that i needed to go

talk to SANTA to make sure he knew just what to bring. And that I couldnt

do that with Marky staying home. !

While I was "talking with Santa", "he" decided to re-activate Markys cell phone. Marky loved being able to text and receive texts while he was in the hospital last time. So Santa gave Marky an early present. !

The Warburton family in our ward generously gave Marky the phone AND paid for service the WHOLE time Marky was in the hospital even thru the summer ! They are a dear family, and we appreciated that so much. Marky thought he was the bomb, with his own phone. !

We would sit for hours and play songs with the keyboard tones for each letter or number. Our favorite was "I hope they call me on a mission"..(or "Missionary stew" for you primary kids !) ! I would sit and type little tones and he would guess which song i was !

Ill post his texting # for you guys when he goes "up to the mountain"( PCMC) for the surgery. He will love getting messages from you.

Two of my VERY FAVORITE (I have three !) BROTHERS' birthdays are this week.

My twin sis ,Lori, and I grew up with them adoring us. We were the babies. They were the "Big Brothers".

They still adore us. They rally around us every time rallying is needed. They live far away, but you'd never know it.

My Mom produced them all a year apart....three years in a row ! Then Lori and I came together ! People thought she had triplet boys and twin girls !

Mom's brave....still is !

Mom and Dad somehow figured out how to raise us in a home with love such that we ALL thought we were their favorite child. And we all thought we were each others' favorite sibling !

Still do !

But I KNOW I am the favorite ! .. Mom told me... and Dad told me..and Steve, Lee and Kenneth and Lori told me !

So, Happy Birthday to 2 of my favorite brothers ! I love you Bootie and Kenny !

Netti, ....your favorite sister !...shhhhh dont tell Lori !

Friday, December 10, 2010

Friday Dec 10th--

Latest update:

Markys GI Doc called today to say that the colonoscopy results indicate that something is pushing in or crowding around the colon on that right side.

We are now waiting for the Surgeon to call.

Before they operate, they want Marky to have a "Barium Enema" !
Its a diagnositic study that they fill up your colon with Barium, the chalky white crap, and make you hold it in while they take a bunch of xrays ! Its SOOOO painful to go through ! I used to do these procedures to patients when I was an xray tech, back in the day. Cant imagine making a little kid endure it.

But we will do it.

The surgeon says he wont do the surgery till Marky has it done. It will help him know more about what he's going in after.

They cant use the "3 hole punch" method (Laproscopy) because his "insides" are too matted down with the fibrosing crud. So they will likely go in the same scar that they carved last year this SAME TIME !

It will be up to the Surgeon, of course. It will be the same surgeon that operated on him initially last year with the exploratory stuff.

Dr. Pohl indicated that what will likely happen is that they will have to re-sect that portion of his colon that is getting choked by the fibrosis/ scarring stuff.

Now we wait for the procedures to get scheduled.

Pray for Marky please.


Wednesday, December 8, 2010

Wednesday---Colonoscopy report--

Marky and I spent all day tuesday enduring the prescribed "Clean-out" protocols.

I did everything he did, so he wouldnt be the only guy gettin picked on...we both ate our green jello, drank tons of gatorade mixed with Miralax, took those little "Bomber" pills..all 4 of em ! We both lost 5 pounds each !

We were at the "Scope" place by 0630 am. On the slab at 0730.

Dr. Harnsberger came out to report that an area on the right side of his large intestine ( hepatic flexure) is being restricted from the "outside" by something which has yet to be determined.

The very smallest of cameras was used to try to get down that portion of the colon with no luck. Several biopsies were done. We'll wait on that.

That area of restricted bowel also has limited blood supply getting to it as well. The color was gray instead of pink.

Markys main Doc is away at a conference till next week. So we will await ideas of how to approach the issue till he returns.

So the phantom pain that was deemed "nerves/anxiety" really does have an etiology. ...the Sclerosing/fibrosing crap is rearing its ugly head again.

Of course it must occur at the same time as last year. Christmas !

Im trying not to have a "come-apart", "unraveling", "freak-out" whatever thing that moms do.

We'll take it on, whatever it is with Marky's Courage to carry us.

Sunday, December 5, 2010

First Sunday in December 2010--

Six yrs ago tonite, there was a quick knock at our door, then a scuffle, and "they" were gone.

Left behind was a simple white box tied with a green bow.

Inside was a fist full of cash and about 8 gold Sacajawea dollar coins.

A typed note, anonymously announced that our "neighbors that loved us" had given what they could to help our family for Christmas that year.

James had, just the month before, broken his neck and scrambled his brain.

We were awaiting the birth of our Angel Sam ( was due in March but came NewYears Day !--Why wait!)

I was overwhelmed with James and what his future would be, along with the coming of a child with Downs Syndrome.

Back to the "box".

The Gold coins were gifted to us by a child that had them in his/her collection of treasures that were meaningful, im certain.

Im sure they were not quickly thought of as a gift to give the Jeanes Family, when the "collection tin" came around to their home.

I can imagine the process that went through this child's heart
(whoever he/she is). "Should I give them, or keep them....I really, really love these gold coins."

The impact of that little white box with the green bow left on our porch, still moves me to tears each year.

I kept the box...AND the gold treasured coins. The green ribbon too.

Its the first thing I get out and put under our tree each year when the decorating starts.

I think of the night our Savior was "given" to this world. He is a treasure that our "Father", im sure, had to really ponder before he "gifted" to us, just as the coins had been given to a family in need.

This year brings even more astounding memories of "gifts" given to the Jeanes family, with the entire season, last year, spent in the hospital with the Primary Children and the angels up there.

Merry Christmas and love, from the Jeanes People.

Wednesday, December 1, 2010


After surveying the little warrior with xrays and the usual "coin toss" of what "it" could be, the experts decided to clean him out !

The "clean out" consisted of a Molasses and Milk concoction that was infused retro-grade into his colon via the "Southern" most approach !

For those of you who dont get my "Sensitive" description of the procedure:
An Enema !

The poor guy was so uncomfortable, crying and trembling, humiliated, etc.

He got through it, though, and was, in my view, 10 lbs lighter afterwards!

The "Head-scratcher's" ended up with the customary diagnosis that should just be named...."MarkJeanes" :

Either the impacted volume of crud in his colon is causing the pain, or the pain is causing his Colon to spasm and pile up with crud. ? ? ?

He is scheduled for a Colonoscopy next week to make sure the Endoscopy centers have their volume quotas met.

Have a better Wednesday. Love you guys, Markysmom