Saturday, January 30, 2010
Posted by kennethcrocheron at 10:30 PM
Posted by kennethcrocheron at 10:24 PM
MARKY IS HOOOOOMMMMMMME ! ! ! !
Who woulda thought!
Marky made a Hero's entrance into the neighborhood yesterday, Friday January 30th! Fifty six days in PCMC!
The streets of stonebridge were filled with fans of all ages as they heralded the
return of the King of Primary's!
Markys fans had prepped the streets with 6 dozen yellow balloons, and a hundred yellow ribbons tied on everything vertical, marking the path to
the hero's home!
There were approximately hundreds or thousands (approximately) of friends and well wishers waving and cheering as they followed his chariot to the home!
Several giant banners were hoisted to pay homage to the King of Kourage!
Cookies and soda pop were shared with all the kind fans as Marky then made
his way through the huge crowd and into his SEA OF BEAN BAGS!!! (As promised)!
So far, 5 "Love Sac's", (aka bean bag chairs) have been generously donated to grant Marky's wish of "No furniture, just bean bags" in his family room! Its every kids dream room now!
Also, as promised, the fridge was stuffed with creme soda. There were still creme soda delivery's coming in as late as 10 ocl pm last night!
The prince of primary's has had a permanent smile on his face since he made his grand entrance! ANNNNDDDD HE HASNT THROWN UP since we came home, either!!!!!! Another miracle!
The Home health nurse came and helped us hook up his IV feeding to his PIC line. Suzanne Peterson, our dear friend and gluten free consultant and pediatric nurse AND MOTHER OF ASHLEY PETERSON--leukemia survivor, came just at the right time to assist in the process!
Marky slept all night without incident and has woken today in fine spirits!
Thanks to EVERYONE for your support and love to our dear miracle child.
WE LOVE YOU GUYS! Lynette, et al.
Posted by Markys mom at 9:20 AM
Friday, January 29, 2010
Posted by kennethcrocheron at 6:19 PM
Posted by kennethcrocheron at 6:13 PM
Posted by kennethcrocheron at 5:41 PM
This is a very busy and exciting day for the family and friends of Mark Jeanes. It was just 2 1/2 weeks ago that one of the close friends who had not seen Mark for a couple weeks remarked upon seeing his swollen body and emaciated arms and legs, " How much longer do you think he has....." The answer to that of course is, "the rest of his life, " just like the rest of us. Thank goodness he can start a new chapter at home.
Posted by kennethcrocheron at 11:05 AM
Today's approximated schedule of events..
...For inquiring minds who want to know!
Early Fri. AM: Blood draw to check 4 any
Fri. late morn: Lab results and possible
last minute steroid/chemo
Fri. mid day: parental education on how to
maintain a PIC line how to give
shots, all that stuff....
Fri early PM: waiting...tapping our foot...
..for discharge clearance.
Fri misc. : Haul 2months worth of fabulous
get well posters, cards, christmas
tree, colored lights, artwork, pictures
to the car/moving van!
Fri afternoon: LOAD UP THE MAN O' THE YEAR and
BRING HIM HOME!
Posted by Markys mom at 7:10 AM
=the winning lottery ticket!
=Your birthday ( if you're under 40)!
=winning the super-bowl!
=making your final car payment!
=being ABLE to make A house payment!
=Bringin Baby Scott Cole home from the Hosp!
=Bringin Sam Jeanes home from PCMC each time!
=Gettin answers to prayers (timely, that is)!
FRIDAY EQUALS..MARK IS COMING HOME !!!
Posted by Markys mom at 7:02 AM
Thursday, January 28, 2010
hay every buddy i'm out of here .....mark
Posted by Markys mom at 7:10 AM
Thursday morning with Marky
Posted by Markys mom at 6:03 AM
Wednesday, January 27, 2010
Wednesday nite from Markysroom ! ! !
Posted by Markys mom at 9:04 PM
Aunt Lori just checked in from her night watch over Marky:
The doctors just have been in to see the miracle boy-Marky and decided to take him off the surgery schedule for tomorrow. He was to have a J-tube inserted into his stomach which would allow feeding directly into his intestines, bypassing the stomach itself.
They will continue to watch him try to keep food down...NO MORE STIR FRY, you guys!!! maybe mashed potatoes, ya think!
So for now, we keep witnessing the miracle of prayer and hope and watch this little angel triumphantly win his battle !!!!!
Oh and by the way, Marky asked Lori is she'd get on the auction and bid on "That Helicopter" !!! .....Just thot i'd give you a heads up..Uncle Lyle ! !
Posted by Markys mom at 9:39 AM
Oh, Yeah,. . .
Don't just check out the stuff up for auction..
You gotta BID too!!!!!!
Did you see the cute booties, the beautiful quilt, the yummy rolls,
the HELICOPTER ride, the facial/massage, the personal trainer, the
tumbling sessions, the photo shoot deal, the pepper mill, the geneology
data entry, the dental exam, the granato's treat basket ???etc etc etc???
You know you want it...just get it ! ! !
Posted by Markys mom at 9:31 AM
Hey you guys ! !
Are you checking out all the cool stuff on
the On-line Auction for Marky!!!
Just Do It !
Marky is working on something to auction off..
...no it's not his old crusty N/G tube...! ! !
Posted by Markys mom at 9:23 AM
Tuesday, January 26, 2010
Tuesday from Markysmom!!
Mark is spending the day with various "Fans" keeping a
watchful eye on him.
Mark's brothers, Sam and Scott, are home ill with sore throats, along with both Mom and Dad!
As a result, Aunt Lori is guarding Marks door with an Iron fist and not
allowing any of us near.
Beth Dansie, Jenni Larsen, Angela Cooley and Allen Cottle are
being entertained by Marky during their various shifts! I told Mark to be nice to them....we'll see how they all do!
Lori has been taking the "night shift" graciously. What a gift she is!
With all the stress of having a child hospitalized and lack of rest, seems like we are catching all the "bugs" that circle.
Thanks to everyone for helping out! Love Netti
Posted by Markys mom at 2:12 PM
Posted by kennethcrocheron at 8:49 AM
Monday, January 25, 2010
Monday Night from Markysmom
Today over 850 children paid tribute to young Mark Jeanes.
They each chose a "Buddy" to tie-up with. Then with enthusiasm that only children
can exude, they helped each other parade the halls of Willow Springs Elementary
School. They were led by Mrs. Lisa Hodson (Mark's teacher) and her 2nd grade
class. As they passed each doorway, the next class joined in the procession until
all classes and grades were in cadence!!
What a sight! Bystanders, including parents and younger siblings and the News
media were amazed at the energy and determination from these valiant crusaders!
They chanted slogans like "Go Mark Go !" and ..."Lets go Mark Jeanes lets go !! They
clapped their hands in rhythm and did the "wave" up and down the hallways !!
I am still overcome with emotion as I write this account. For an entire community
to come together for a small child in his time of need IS a miracle that I hope each of
There is so much good in EACH of you. Mrs. Hodson called me tonight after counting the
donations and said there was close to 4,000 dollars! And quite a bit of it was in small bills
and LOTS of coins that likely came straight from piggy-banks!
One of the school secretaries said she overheard a child coming to the office to call his/her
mom to tell her to " bring his/her "Christmas money" to the school...and Hurry up, the run is gonna start"! ! !
These precious children are our hope for the future. I know you'll agree that this display
of charity and team-work demonstrates that our future is in worthy hands! Also, We cannot
forget the Teachers, principals, parents and leaders who mentor these young souls to
"do good unto others" !
To all of you, I send my warmest wishes of love and gratitude. I wish the choicest of
blessings on all who have contributed at this event and the on-line auction going on
now, and the many anonymous donations at America first! ThankyouThankyouThankyou!
Posted by Markys mom at 7:43 PM
What a tremendous collection of true buddies today at Willow Springs Elementary School in Draper where headed by Mrs Hodsons' class and followed by the entire student body and teachers, there was the most impressive 3 legged race parade with wonderful students raising there voices for Mark. "GO MARK JEANES"
Posted by kennethcrocheron at 7:12 PM
Don't forget Mark's Buddy Run today at 2:15 at Willow Springs Elementary! Pledges can be made online or at any America First Credit Union. See you there!!
Also, the online auction has begun! Visit http://moneyformarky.blogspot.com/ to check out the neat items people have donated and start bidding. New items will be posted everyday, so check back daily!
(If you would like to donate to the auction, there is still time. Send an email with your donation to firstname.lastname@example.org) Also, don't forget to tell all of your email, facebook and myspace friends about the auction.
Posted by Byron and Jana at 8:21 AM
Sunday, January 24, 2010
Mark and Scott and Ken went for an extended stroll and Mark got rid of his walker! He took his Army Ranger Paratrooper to the 4th floor atrium where Mark dropped the trooper over the rail down to the 3rd floor. Scott was the designated retriever and there were 4 completed strategic jumps.
Posted by kennethcrocheron at 5:44 PM
Saturday, January 23, 2010
Posted by kennethcrocheron at 5:18 PM
Posted by kennethcrocheron at 11:52 AM
Flash: Mark is going to get his Tube pulled !!!!!!!!!!!!!!!!!!!! He is debating if he wants to do it himself? Anyway Mark is having a good day and we are going to try real food.
Posted by kennethcrocheron at 11:22 AM
We are lining up on the target! Dr Inman of the GI team had sent slides to associates in Perth, West Australia by the name of Kevin Murray and Dr Vijay Viswanathan from the dept of Pediatric Rheumatology at Princes Margaret Hospital.
Posted by kennethcrocheron at 10:04 AM
Thursday, January 21, 2010
Thursday night from Markysroom--
Posted by Markys mom at 7:55 PM
Wednesday, January 20, 2010
It is High Noon in the room of the patient and the update for today so far is that they are trying to ween Mark from the narcotic drug pain killers using instead, methadone. Mark's tube output is diminished which is good and the docs have decided that tomorrow they will try eliminating the suction and simply try gravity to drain the tube relying instead on Mark's digestive system to do some of the work.
Posted by kennethcrocheron at 12:03 PM
Tuesday, January 19, 2010
Posted by Markys mom at 8:38 PM
Posted by Markys mom at 6:34 PM
Tuesday Night from Markysroom!!!!
Posted by Markys mom at 5:57 PM
Monday, January 18, 2010
Monday night in Markys room!
Posted by Markys mom at 7:40 PM
Posted by Markys mom at 6:20 PM
We are holding an online auction to help raise funds for the Jeanes family!
The online auction will be posted on Marky's blog, http://www.prayformarky.blogspot.com/, and will run Jan 25-Feb 3. The auction will start next Monday, January 25 and new items will be posted for auction every day for 5 days. So check back daily! Then bidding will continue until Feb 3rd.
To donate an item or items to Marky's auction, please email (email@example.com) and include contact information, a description and picture if possible. (Be specific and give the value). Use the who, what, when, where, why when writing about your good/service.
Let's get creative! Photography, hairstyling, greeting cards, graphics design, toys, hair bows... any goods or service would be greatly appreciated!
Again, the online auction will be posted on Marky's blog, http://www.prayformarky.blogspot.com/, and will run Jan 25-Feb 3. There will be a separate post for each auction item and bids will be accepted in the form of comments on each respective post. Bidding will end on Wednesday, Feb 3rd, at midnight. Winning bidders will send payment via PayPal or check. Once payment is received we will contact the auction item owner and provide shipping/contact information.
With your help, we can raise a significant amount for the Jeanes family. Please join us and donate to Marky's online auction with your time or talents.
Ex.1 - A&D Helicopter is offering a 45-minute helicopter tour for 2 people in the Salt Lake City, UT area. Offer expires 12/10. Est. retail value $350.
Ex.2 - Bryanne Fidler, I would like to donate three set of girls hair bows. Est value $12. A picture of the bows is below.
Posted by B. Fidler at 10:50 AM
Saturday, January 16, 2010
Marky's back "in-country" from Xray.
Posted by Markys mom at 2:08 PM
Posted by Markys mom at 12:00 PM
Saturday morning in Markysroom--
Posted by Markys mom at 10:00 AM
Friday, January 15, 2010
Posted by Markys mom at 7:16 PM
Some fun things about today----
Posted by Markys mom at 4:38 PM
Posted by Markys mom at 4:12 PM
Friday afternoon from Markysroom--
Posted by Markys mom at 12:57 PM