Thursday night from Markysroom--
Thursday, January 21, 2010
Today Marky had a great day! His N/G tube was disconnected from the wall suction canister and now is draining via gravity into a "diaper" (shhh..don't say the "diaper" word so loud) that is tied around the end of the tube to catch any crud coming out.
So far, not too much has drained...which is good. The next step will be to just clamp the tube and see how his nausea goes...then its GOODBYE TUBE!!!! So keep your fingers crossed!!!
Marky would like his nose and throat back all to himself! No more sharing space with that dumb tube!!
He got a giant dose of steroids today and seemed to tolerate it well.
Additionally, He got a visit from Bishop Rupp and seemed to tolerate that well, too! (teasing!!!! OKAY!!!)
Marky's dad has been on duty for almost 2 days straight and has gone home for a much needed night's sleep. Aunt Lori will guard the Prince of Primary again tonite.
One of the Doc's got a reply from a consult request about Marky that
was sent out. Some Dr. out there thinks they have seen this condition
before and has some ideas. ! We should hear on this tomorrow and will
shout from the roof tops if they have figured him out!!!!
Until then, I believe all of our prayers ARE being heard and answered.. in so MANY ways. Thank you, everyone!! And love to all.
Posted by Markys mom at 7:55 PM