Happy New Year;
Thursday, December 31, 2009
Posted by kennethcrocheron at 5:10 PM
Wednesday, December 30, 2009
- A note from Marky's big brother Scott,
Once again thank you all for being so supportive in this unfortunate event. It is nice to have such caring and loving friends and neighbors to cheer are little marky on. Just the other day i was up at the hospital at marky's bed side thinking of how many people have been up to see mark in the past few days, and how much people care for marky and our family.
In My opinion even if they havent found a cure marky's problems we still have humor and positive thinking........ When i was up in the ICU with marky (once again at his bed side) i held his hand as he gripped mine ever-so tightly, and i said"oh marky! i am so, so, so sorry" as i was trying not to cry in front of him and then he said "hey at least they know whats wrong with me" (this was before they out-ruled the limphoma or how ever you spell it). This made me realize that he is such a trooper and that he always tries to find the positive things in every aspect of his life. It also made me think of how hard marky is personaly praying and how much it means to him.........
"Heavenly father, are you really there?
And do you hear and answer every childs prayer?
some say that heaven is far away, but i feel it close around me as i pray"
- primary song "a childs prayer".
THANK YOU! - scott cole :^)
Posted by Markys mom at 7:08 PM
Today at the PMC amusement park:
Posted by kennethcrocheron at 5:14 PM
Tuesday, December 29, 2009
Posted by Markys mom at 8:27 PM
Posted by Markys mom at 8:12 PM
Posted by Markys mom at 7:05 PM
Posted by Markys mom at 6:24 PM
Speaking of "running buddies",
Posted by Markys mom at 6:01 PM
Words of wisdom from Marky' cousins, Brooke and Brittany:
Posted by Markys mom at 5:43 PM
Tuesday in Markysroom---
Posted by Markys mom at 5:16 PM
Yesterday the surgical team visited Marks room and discussed taking out the feed tube in favor of a J-Tube in an attempt to nourish the upper colon which has become dormant. This is certainly a necessity to insure that the colon survives.
Posted by kennethcrocheron at 9:07 AM
Monday, December 28, 2009
Monday morning--from Markysmom,
Posted by Markys mom at 9:43 AM
Sunday, December 27, 2009
Posted by Markys mom at 7:39 PM
Sunday night in Markysroom!
Posted by Markys mom at 6:12 PM
Saturday, December 26, 2009
Posted by Markys mom at 5:39 PM
Saturday morning in Markysroom----
Posted by Markys mom at 8:32 AM
Friday, December 25, 2009
Posted by Markys mom at 9:17 PM
Posted by Markys mom at 9:02 PM
Christmas Day from Markysroom--
Posted by Markys mom at 1:00 PM
Thursday, December 24, 2009
Posted by Markys mom at 3:45 PM
Posted by Markys mom at 3:00 PM
From Markysmom on Christmas Eve
Posted by Markys mom at 2:38 PM
Merry Christmas to all!!!
Posted by kennethcrocheron at 8:15 AM
Wednesday, December 23, 2009
Please know how deeply moved and appreciative the Jeanes and family are for the many kindnesses, gifts, prayers and fasting in Mark's behalf.
Posted by kennethcrocheron at 6:27 AM
Tuesday, December 22, 2009
In Mark's surgery today they found spindle cells in his upper colon. These may be carcinoma or sarcoma malignancy or it could be a pseudo tumor. They also put a catheder in his heart which comes out through his chest to allow the doctors to do more diagnostic testing and give them a direct line into his aorta. Pathology reports are expected back midday tomorrow (Wed). Until then no diagnosis has been made and Mark will stay the night in the ICU. Please keep Mark and his family in your prayers. The Jeanes' appreciate all the encouraging words and acts of kindness that have been done in their behalf. Pray for a miracle and pray that they can get some real answers soon!
Posted by Byron and Jana at 10:54 PM
Well, it looks like things have taken another turn. Mark woke up today with a high fever, so they will be doing a full exploratory surgery of his abdomen in about an hour. They will biopsy many different tissues for analysis. The surgery is to last 3 to 4 hours. Mark will then be moved to ICU and will not be able to have visitors to keep a very sterile environment. We will post more as we find out.
Posted by Byron and Jana at 12:03 PM
Monday, December 21, 2009
Today was another difficult day for Mark as he underwent a procedure to drain 1000 cc's of fluid from his abdomen. He retains at least another 1000 cc's. This fluid will be examined at a cellular level for hidden markers for lymphomas. An initial finding from the fluid today revealed Celiac's disease which among other things presents in malabsorption of fats and nutrients in the gastrointestinal tract. Symptomatology of Ceiliac's includes bloating and stomach and lower tract discomfort.
Posted by kennethcrocheron at 5:24 PM
Sunday, December 20, 2009
Mark is back in his room and the Onologists have visited. They ruled out Lukemia and most Lymphomas. Two undeslosed items for which they tested will not post results until Wednesday. While in surgery they placed a pic line which atually is a double valve line allowing them to extract blood while introducing medsthrough the same line. That is causing Mark considerable pain. His meds were changed to help with both pain and nausea.
Currently Marky is sedated and in a deep sleep. He will need to have fluid drained from his abdoman as it seems to be impinging on lung function and causing his sats to be low.
I will feed additional information as soon as it is received.
Posted by kennethcrocheron at 2:53 PM
Mark is headed to surgery for his Bone Marrow Biopsy. This after a night of throwing up and discomfort.
Posted by kennethcrocheron at 8:07 AM
Saturday, December 19, 2009
Today so far has been a pretty good day off for Mark with simply the usual pokes and prods but no torture sessions.
Posted by kennethcrocheron at 2:59 PM
Mark Jeanes having been originally scheduled for the bone marrow biopsy today, December 19, was thrilled to hear that he will instead have to wait until tomorrow: his parents however were not so thrilled. Seems that they are tired of the stay and the unknown, to wit; the original diagnosis that the oncology team was 90% certain of was Burkitt's Lymphoma. They now have redacted that "for sure diagnosis" in favor of the the, "who knows diagnosis." The Gold Standard of Leukemia and Lymphoma diagnostics is the Bone Marrow Biopsy and that (they say) will either definitively say there is or isn't a cancer. Can you imagine the emotion James and Lynette are experiencing. Normally a person needs to purchase a roller-coaster ticket for this kind of ride.
Posted by kennethcrocheron at 2:13 PM
First of all, Thanks to all of you for your prayers and support! This would be impossible to bear without your many kindnesses.
Tonite, Mark is more "perky" than I've seen him for days. We had a "field trip" to Intermountan Medical Center for a PET scan.
The report was that STILL a mass cannot be found! Only a train of Lymph nodes lit up on the scan on his neck. Apparently not "hot" enough to impress the Doc's.
So Sat. morning he will undergo a bone marrow biopsy to continue the "fishing expedition"!
In otherwords, the diagnosis of Burkitt's lymphoma has been deleted from his list. He returns to the "unsolved mystery" club.
He continues to maintain his stellar courage and will to fight. An example to all of us!
As we got back in the transport vehicle to return back to Primary"s, He informed the driver that "Primary'S" had burned down and that he should just drive us home instead!
Tonite each time his nurse enters the room, he pretends to have a seizure by shaking and gagging. When she reacts with shock, he gets a little grin of accomplishment!!!
I realize the high probability that his improved status today is a direct result of blessings upon him that have been pleaded for by all of you. And I send my warmest thanks and wishes for love and happiness in each of your families.
Goodnite, Marks mom
*post note (Saturday morning): The bone marrow biopsy has been postponed until tomorrow due to a high volume of emergency surgeries taking place at the hospital today.
Posted by Byron and Jana at 10:29 AM
Friday, December 18, 2009
This morning Mark is headed to InterMountain Hospital for a PET scan as the CT Scan last night was inconclusive.
Posted by Byron and Jana at 11:31 AM
Posted by Byron and Jana at 7:33 AM
Thursday, December 17, 2009
Please join us in a special fast for Mark and his family. Thank you!
Posted by Byron and Jana at 7:48 PM
Mark is having his second CT scan to pinpoint where everything is so they can start treating it. He will then be moved to the 4th floor oncology ward. Everyone is very impressed with the oncology team and feel like they are in good hands. James and Lynette are still finding things to smile about, but have definitely had their ups and downs on this wild ride. Phew, what a day! They were visited by some of the Grizzlies and some of Santa's dogs today. Ken has promised there will be pictures to follow. :) Visitors will be very limited now that they will be staying on the oncology floor, but please feel free to leave comments and encouraging words here for the Jeanes's. Let's all keep our hopes up and our prayers earnest! Thank you for your love and support thus far!
Posted by Byron and Jana at 5:20 PM
The oncology team has a preliminary diagnosis of Burkitt's Lymphoma. While this is a very fast growing tumor (which is why it has not shown up on any prior tests) it responds well to vinblastine. The complications are kidney problems so chemo is done in low doses so as not to kill the tumor too fast, thereby plugging the kidney.
Posted by Byron and Jana at 2:44 PM
I just got word that Mark is out of surgery. James, Lynette, Lori (Lynette's sister), and Ken (a close family friend) were there together in the waiting room. The news was not what anyone had hoped for or expected. Mark has lymphoma in his intestine. They are still not sure what kind it is, but what we have been told so far is that most of this type are treatable with a generally high success rate, so we need to be hopeful. They are awaiting some other test results and will likely then be moved to oncology, which is just one floor up from where they are right now in the same hospital. We'll keep updating as things change. Keep praying!
Posted by Byron and Jana at 2:08 PM
Mark had an ultrasound and we are awaiting results. He goes to surgery around 11:15 today. He had a rough night but right now he is doing fine.
Posted by Byron and Jana at 10:37 AM
Please remember Mark in your prayers. Today he gets a Laproscope to asses abdomen and GI track. The MRI shows nothing conclusive. They may at the same time put in a feeding tube.
Thanks to All
Posted by Byron and Jana at 8:05 AM
Wednesday, December 16, 2009
Mark had a cranial MRI late this afternoon and as of 7:40 PM no results have been received. He continues to be unable to hold down food and is receiving nourishment through the vein.
Tomorrow @ 11:00 AM mark is scheduled for an abdominal Lapcroscopy or as Lynette likes to call it, "3 hole punch"
This again is exploratory in nature. The Infectious Disease Team today ruled out any known issues of this nature.
Posted by Byron and Jana at 8:11 PM
I talked to Lynette earlier this afternoon. She said Mark was lethargic all day yesterday but perked up when she got there after work. She had to go to work yesterday since she has already missed so much and was at work again today but the doctors called her back to the hospital to discuss options and make some decisions. Mark has been having a hard time even holding his head up and lifting his arms. The plan today was to put in a J-tube (Jejunostomy Tube ), which is a type of feeding tube. The primary reason for use of the J-Tube is to bypass the stomach and to be fed directly into the intestinal tract. Lynette wanted me to add that the only reason that they were going to do this was because she had a stern talking to with the doctor last night after he suggested they wait a few more days to go ahead with it. She put her foot down because she sits there all day watching her boy loosing weight and not keeping anything down for days, even vomiting green bile. So that was the plan until just 30 minutes ago. They were in the process of putting the feeding tube in but the surgeon came in and said to wait because he wants to do exploratory surgery tomorrow. So they are holding off one more day and Lynette is not planning to go to work the rest of this week.
Posted by Byron and Jana at 3:14 PM
This website has been set up to keep friends and family updated on the latest on Mark Jeanes and his condition and care. I live next door to the Jeanes family and set this up with their permission to keep loved ones up to date so they can spend their time with Mark and making decisions on his behalf. Everything I post will come directly from what James and Lynette ask me to post so the information will be straight from the source. Feel free to leave comments and encouraging words for the family. Thanks to everyone for their concern, prayers and continued service in behalf of this sweet boy and his wonderful family.
Posted by Byron and Jana at 3:08 PM