Sending out Happy New Year wishes to all of Marky's Bloggers---
Thursday, December 30, 2010
Posted by Markys mom at 8:33 PM
Friday, December 24, 2010
MERRY CHRISTMAS TO ALL OF MARKY'S BUDDY'S
Posted by Markys mom at 10:49 PM
Posted by Markys mom at 10:42 PM
Thursday, December 23, 2010
Christmas Eve Eve---
Afraid to say it outloud.....but looks like Santa will be visiting us at home this year !
Marky is feeling great, since his honorable discharge last week.
He's taking oodles of ex-lax every day, and that seems to be doing the
trick. We D/C'd the use of the Miralax.
No pain reported....unbelievable.....miracle!
Hope all of Markys Buddys have a miraculous Holiday season full of fun and good health.
We love you. Lynette
Posted by Markys mom at 4:23 PM
Saturday, December 18, 2010
HAPPY BIRTHDAY!! To our family's "guardian", Ken Crocheron !
Posted by Markys mom at 8:21 PM
Friday, December 17, 2010
Marky CAME HOME !
After all the tests and hand wringing and coins tosses, the little warrior was released.
The surgeon was not comfortable opening him up, without more convincing evidence. Thats good....convincing evidence is NOT good.
Marky was referred to an "integrative medicine" Doc who deals with chronic pain .
The colonoscopy that showed some weird stuff is now being deemed a mystery. None of the other tests supported what the colonoscopy showed.
As always.....a mystery !
But Marky is home and cheerful. He hasnt eaten any solid food for 3 days, just liquids. So today he's eating well, courtesy of aunt Lori.
We will be home for Christmas ! No need to transport Marky's portable chimney ( from last years stay) up to PCMC. Markys cousins crafted the beautiful, authentic-like chimney, complete with stockings, simulated wood fire and brick -like motif !
We will continue to enjoy it at home !
Posted by Markys mom at 2:59 PM
Wednesday, December 15, 2010
Dont believe the "sad" face. He's been playing "HALO", the x-box game for 2 hrs straight with our home teacher !
Posted by Markys mom at 7:48 PM
Wednesday with the "Champion"---
Posted by Markys mom at 6:24 AM
Tuesday, December 14, 2010
MARKY IS BACK "IN COUNTRY" AT PCMC ---
Posted by Markys mom at 1:53 PM
Tuesday the 14th with Marky ---
Posted by Markys mom at 6:54 AM
Friday, December 10, 2010
Friday Dec 10th--
Markys GI Doc called today to say that the colonoscopy results indicate that something is pushing in or crowding around the colon on that right side.
We are now waiting for the Surgeon to call.
Before they operate, they want Marky to have a "Barium Enema" !
Its a diagnositic study that they fill up your colon with Barium, the chalky white crap, and make you hold it in while they take a bunch of xrays ! Its SOOOO painful to go through ! I used to do these procedures to patients when I was an xray tech, back in the day. Cant imagine making a little kid endure it.
But we will do it.
The surgeon says he wont do the surgery till Marky has it done. It will help him know more about what he's going in after.
They cant use the "3 hole punch" method (Laproscopy) because his "insides" are too matted down with the fibrosing crud. So they will likely go in the same scar that they carved last year this SAME TIME !
It will be up to the Surgeon, of course. It will be the same surgeon that operated on him initially last year with the exploratory stuff.
Dr. Pohl indicated that what will likely happen is that they will have to re-sect that portion of his colon that is getting choked by the fibrosis/ scarring stuff.
Now we wait for the procedures to get scheduled.
Pray for Marky please.
Posted by Markys mom at 9:00 AM
Wednesday, December 8, 2010
Posted by Markys mom at 11:02 AM
Sunday, December 5, 2010
First Sunday in December 2010--
Posted by Markys mom at 4:21 PM
Wednesday, December 1, 2010
After surveying the little warrior with xrays and the usual "coin toss" of what "it" could be, the experts decided to clean him out !
The "clean out" consisted of a Molasses and Milk concoction that was infused retro-grade into his colon via the "Southern" most approach !
For those of you who dont get my "Sensitive" description of the procedure:
An Enema !
The poor guy was so uncomfortable, crying and trembling, humiliated, etc.
He got through it, though, and was, in my view, 10 lbs lighter afterwards!
The "Head-scratcher's" ended up with the customary diagnosis that should just be named...."MarkJeanes" :
"WE DONT KNOW"
Either the impacted volume of crud in his colon is causing the pain, or the pain is causing his Colon to spasm and pile up with crud. ? ? ?
He is scheduled for a Colonoscopy next week to make sure the Endoscopy centers have their volume quotas met.
Have a better Wednesday. Love you guys, Markysmom
Posted by Markys mom at 9:43 AM
Tuesday, November 30, 2010
Mark Jeanes is at it again:
Posted by Markys mom at 11:24 AM
Sunday, November 28, 2010
Sunday Evening with Capt. Marky--
Posted by Markys mom at 9:56 PM
Tuesday, November 23, 2010
We got brave and asked a Dr. in our neighborhood if SHE would give Marky his Chemo shot a couple of weeks ago.
Posted by Markys mom at 10:26 PM
Monday, November 15, 2010
THIS IS ON MY FRIDGE DOOR:
Posted by Markys mom at 9:19 AM
Sunday, November 14, 2010
Posted by Markys mom at 7:30 AM
Posted by Markys mom at 7:27 AM
Posted by Markys mom at 7:21 AM
Posted by Markys mom at 7:17 AM
Saturday, November 13, 2010
Saturday the 13th.
After Marky's "high profile" day with the Veterans,
He spent all day Friday with another set of Vets...
PCMC hosted Marky for a round of chemo/Remicade.
The "Honorary Captain" rode atop a hospital gurney !
He was awarded with an IV full of the magic potion .
His "Superior Officer" (Dr. Pohl) did an official inspection.
The recurring pain, that no one knows what to do with, has been labeled as...."anxiety issues" !
So a resulting increase in his amytriptaline dose is the attempted resolution to end this latest "conflict" in the battle against his chronic pain.
We'll see how that goes.
James was Markys "wing-man" yesterday up on the "hill". I worked all day.......mostly trying to work through my "mommy guilt" for not being with my little warrior in his latest skirmish.
Thanks for all your comments and prayers for Marky. YOU ALL keep me going several times a day as I check this blog for your visits.
Posted by Markys mom at 8:00 AM
Friday, November 12, 2010
Posted by Markys mom at 8:34 AM
Thursday, November 11, 2010
VETERANS DAY 2010,
Posted by Markys mom at 7:20 PM
Wednesday, November 10, 2010
Wednesday the 10th of November......
Marky went to school yesterday. Stayed all day.
First time since last Tuesday.
He's trying to make it again today.
He's still in quite alot of pain. When I got home from work last night, he looked exhausted, worn out.
His face begs for relief of pain. My heart begs for relief of his pain, and every other child suffering.
Posted by Markys mom at 8:35 AM
Sunday, November 7, 2010
Posted by Markys mom at 3:03 PM
Posted by Markys mom at 11:54 AM
Saturday, November 6, 2010
CHILDREN SHOULD NOT HAVE TO SUFFER
Posted by Markys mom at 7:59 AM
Friday, November 5, 2010
Friday the 5th of Nov.
Marky's been sick for 3 days.....
The infamous belly pain that mysteriously comes and goes.
He actually went to school Mon. and Tues..ALL DAY.
Even had a "play date" with his FAMOUS "RUNNING BUDDY"--ALEX tues after school !
Then Tues night around nine, the pain hit. He was clutching the blankets and gripping my wrists like a vice. His toes were curled under ( a sign of pain or stress in kids, dont ya know), and he was pale as a sheet.
He stayed home from school Wed, Thurs, and wouldve today if they werent already off for parent teacher conferences.
Got a humorous call today from a bill collector for $102.30. Unpaid office visits for Mark and Sam!
I chuckled as i spoke with the very nice concerned lady that i owed her SO MUCH MONEY !
I then related to her my story about Marky's currently still UNPAID $300,000.00 plus hospital bill at PCMC, among other ginormous price tags for health !
....Just another fun day in the life..........
Have a great and HEALTHY weekend everybody.
Love , Lynette
Posted by Markys mom at 4:50 PM
Wednesday, November 3, 2010
Wednesday Nov 3rd.--
Today my niece, Brittany Beecher, enters the MTC.
She's going to Spanish speaking Minneapolis !
I was present as the Stake Pres. "set her apart" last night.
I've known her and Brooke (her identical twin) for 21 yrs.
My bio-identical and I often say to each other "we dont know where they came from !"...."certainly not our gene pool" ! "They are too perfect"....
And other things like that.
Britt even spent the balance of her last day with her "special needs" friend, Allie, reassuring her that she would be back and not to worry. That she was going away to teach people about Jesus.
Britt met this little friend in high school as a "peer-tutor" for the special needs kids and still keeps in touch with her years later.
As I sat listening to the Stk. Pres. giving Britt the blessing, I decided...
...Those redheads came to this existence already "Set-apart".
Love, Aunt Netti
Posted by Markys mom at 10:49 AM
Friday, October 22, 2010
1) Sam had his IEP assessment at school this week to evaluate his progress.
His average scores were.....at or Less than 1% for all skills when compared to "typically developing same-age peers".
They recommended "supplemental testing at a future date when Sam
exhibits more cooperative, assessment-ready attitudes and achievement-
motivated behaviors" ...
They did say that " Sam is working on counting 1-10. He enjoys counting
1-7 but sometimes struggles with 4."
They did say that "Sam has a charming, socially engaging personality.
He does, however, have difficulty staying on task to an activity that he is
not interested in."
Sam was socially developed and acceptable enough to participate in: .....School assemblies only. Otherwise he is to be kept in his "special class".
That said.......... item #2 :
2) Sam and I had the Privilege of attending a "Special Needs Ym/Yw talent show last night!
These "earthly angels" had us captivated and amazed !
As I sat in the audience and watched them one by one perform in their own special way, I knew i was NOT worthy to be among them.
Yet they accepted me and loved me and smiled and hugged me.
I was in the " less than 1%" of that population. !
Would that we could all be as they are.....quick to love and accept.
Unconditional at any level. No boundaries, limits or expectations.
Less than 1% ... by whose standards !
Also, of note ....
The invitation to attend this "talent show of angels" was extended to me by Brock Dansie, who turned 18 yrs old yesterday !
He and I have known each other since approx his 18th WEEK of life !
I met him during an ultrasound on his Mom, Beth Dansie !
I was lucky enough to have viewed him many times before he was born. I knew he was special, even then !
I never saw him after he was born....until about 8 years later.!
I was shopping for a new home in a good neighborhood and was parked in front of what is now our home. An adorable little boy came quickly walking over to my sister and I, waving like crazy--greeting us like we were celebrities.
We recognized that this little guy was indeed a "special" boy....My sister, Lori said to me.." you better buy this house, ...that little boy's gonna need you . "
A few weeks later as we were moving our stuff in, Beth and Dave Dansie came rushing across the street to say....
"HEY ! You're Lynette ! You are the one who scanned our little boy, Brock and told us that you thought he was "unique" (because of his head shape and tons of amniotic fluid and other stuff seen) ! " The doctor's didnt think anything was "wrong" with him.....But you were right ! "
Then began...or continued, our friendship and journey with "Brock" !
Now he is 18 and has moved on to another neighborhood and left me staring at his empty house where he used to watch out his front window for me to come home so he could wave to me or call me on the phone and ask how my day went and how everyone in the family is feeling.
My sister was wrong, I needed " that little boy"...he didnt need me !
Miss you Brock, Love Lynette
Posted by Markys mom at 10:33 AM